Hello my name is Nazan, I’m 18 years old.
My aim is to raise awareness for invisible illness’s, disabilities, and social dysfunction. I’m a singer/songwriter, and also write about these topics to. I got diagnosed with a rare eye condition called ‘Rod Cone Dystrophy’ about 8-9 years ago, at around the age of 9.
One day I bumped into a post, and some teenage boys started laughing. I wasn’t upset, but it made me think. How were they meant to know that I’m visually impaired? After all, young kids and teenagers don’t get taught about this in school! right? This tiny accident inspired me to do this project.
Before I share my journey with you in further detail in my next blog post, I would like to make it clear that I’m not doing this for sympathy at all. I don’t feel sorry for myself and neither should any one else. I’m doing this because I want to raise awareness about the important things that matter. I want people to take ‘invisible illness’ seriously. This is something we don’t get taught in school.
One thing that we do get taught about, which is also an importat matter, is socially accepting gay people. Honestly, at first this was weird for me as I grew up in a Muslim family. BUT I’ve grown up to learn that everyone is equal, and no one should be ashamed of who they are, and no one should feel isolated for being different, and I love this country for its accepting nature of people of different race, and beliefs. Although racism still happens to this day, England is very developed and is turning into a beautifully multicultural place, especially in places like London and Brighton.
Anyway, my point is that if socially accepting gay people is taught, why can’t socially accepting people with disabilities be taught as well?
Do you remember that person in your class in your year in secondary school that had autism, OCD, ADHD, or any other learning or physical disability?? Do you remember the people in your class throwing things at him/her, winding them up, and saying nasty things and bullying that person? Do you realise how this could affect someone for the rest of their life? You could’ve been the victim, or you could’ve been the bully, but if you were the bully, how would you of known that the person with a disability was living in a completely different world to you? After all, this is something we don’t get taught about in school, kids are cruel, kids are cruel…
People that are different, shouldn’t be ashamed of who they are. People who have a rare condition shouldn’t be afraid to share it with everyone. If we don’t share what happens inside us, how are people meant to know, and how are people meant to help?
I hope my project helps people with an invisible illness to come out of their shell and express their journey. I hope people who don’t have an invisible illness are more understanding to people who do.
We may not all have an invisible illness, but we all have invisible thoughts. Would you join me and share to aware? Don’t be a ghost and hide what knocks you down most, everyone has a voice, so why don’t you speak up?